Some of you that “know ” me (either for REAL or through other social media outlets) might know that I recently got a NEW badge to hang on my “wall” of things that define me. I was screened and approved to be a Patient Advocate for Biogen Idec as a voice for Tecfidera… imagine THAT! Read More ...
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My name is Meg and I have MS. I was diagnosed in 2007, on December 21st (Merry Christmas to me!) One of the most common questions I get is about HOW I KNEW – what were the symptoms that led me to go to a doctor. In 2007 my children were 5,7 and 9 and Read More ...
The post I Can’t Fight This Feeling Anymore – Biogen Tecfidera Story appeared first on BBHwithMS.
The post Well Now….THIS Is Just Funny – For ANYONE That Is a Parent…and covers bedtime!!! appeared first on BBHwithMS.
I AM STRONG! Always have been, and hopefully always will be. I didn’t choose to get this disease; I’m pretty sure NO ONE did (or any other disease for that matter.) When I was confronted with the truth, for the REAL reason that first my foot felt like it was chronically asleep, then the leg, Read More ...
The post THANKFUL For That Which Makes Me Strong – How MS Made Me Stronger appeared first on BBHwithMS.
I’m lying in the pouring rain, covered in shattered glass, wine and blood; unable to get up because my legs have gone paralyzed. All I can do is laugh; the body shaking, eyes watering up type of laughter. As hard as I try, I cannot get back up. I keep thinking of the old t.v. Read More ...
The post FUCK! I’ve Fallen & I’m Not Sure I Want To Get Up! appeared first on BBHwithMS.
The post VIDEO – Meredith Vieira and her husband Richard M Cohen – who lives with MS: Web Exclusive appeared first on BBHwithMS.
I have always liked Dustin Hoffman and enjoyed his work as an actor. But having seeing this interview on YouTube, has made me view him in a whole new light. It has really made me think about raising Piper and how much I really want to figure out just the right “mix” of confidence and Read More ...
The post Thoughts About Beauty and Image – Raising a Child To Avoid The Bullshit & Crap In Life appeared first on BBHwithMS.
My absence from here began as a result of the chaos that hits during the holidays. Between the kids wrapping up school, holiday parties, song festivals, demanding social schedules to ensure that every last friend is seen before break begins, the pressure to get the house decorated (times two in my case, as we had Read More ...
The post MIA No Longer!!! appeared first on BBHwithMS.
Death, the lose of life. It is something that many of us have been bombarded with over the past few weeks. First Malaysian flight 370 with 239 passengers disappears, with seemingly no trace of where it went or what happened. Then, the horrible and tragic mud-slide in Oso, Washington. As of this morning, 25 bodies Read More ...
The post Life is Too Precious, Too Short and Too Unpredictable to Waste a Single Moment appeared first on BBHwithMS.
For those that have been waiting/looking for an update about my experiences with Tecfidera, I DID finally remember to write one! Truthfully part of the lack of writing about it, is there isn’t that much to say, it’s been going pretty well, but hit the end to know all the details. Looking back, I am Read More ...
The post My Booty Call – And an update on Tecfidera appeared first on BBHwithMS.
Talk about a long ass hiatus! I stopped writing per the advice of my attorney – when it seemed that my “wasband” was trying to use my blog – and what I wrote about – against me in court. I don’t have anything to hide, nor do I regret anything that I have put out Read More ...
The post Does Being Vain Trump Being in Pain? How I lost my BBH appeared first on BBHwithMS.
Wishing everyone a wonderful holiday season, filled with friends and family, laughter and cheer!!! I created a new page on my blog CLICK BELOW Resources – ALL THINGS About MS I have included the link here because it seems that I have made some error, as it is not appearing along the menu bar where you Read More ...
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My life has changed SO much in the past 10 years, when I sit down and spend any time thinking about it, it really is mind blowing. When I was first diagnosed with MS – I was blessed to have a doctor that seems to have understood who I am and how I deal with Read More ...
The post Another Year with MS – Being A Strong Motherfucker & Living Out My Dream appeared first on BBHwithMS.
As you may know, I recently found the time to put together the list of all of the Multiple Sclerosis Resources that I have found over the past few years. One of the sections that I was most excited about putting out there for the world to see and use was the list of books Read More ...
The post MS Book Review: The Dog Story by Matt Cavallo- a MUST read!!!! appeared first on BBHwithMS.
MEET Orange Man OK…..So THIS is the shit that I come up with in middle of the night, when I SHOULD be sleeping. Orange Man was conceived one day a while back when Shawn made one for me out of an orange peel. Over the next few days he kept putting him in funny places Read More ...
The post Brilliant OR Hairbrained MS Fundraising Idea?!?! appeared first on BBHwithMS.
The Orange Man Project Game on!!! For those that read my last post, I apologize for a bit of a repeat but want to make sure that everyone is up to speed. (The “How to make your very own Orange Man” video is below) As I said in my last post….this is Read More ...
The post Orange Man – WORLD TOUR 2016 appeared first on BBHwithMS.
THIS POST! Last week, while spending a bit of time on Twitter, trying to get the hang of it (which btw, you really can’t….it just doesn’t make sense) I somehow or another happened upon @ATOWalksHard. I don’t know if I found them, or they found me, but we were united. As I shamelessly plugged Orange Read More ...
The post What Do You Get When You Combine Inappropriate Me With a Bunch of Frat Guys and MS?!?!? appeared first on BBHwithMS.
Hey all…back from my “winter break with the kids/parents visiting from out of town visit” hiatus. I have good news and bad news. The BAD NEWS is that I had a pretty bad fall. Knees and palms were pretty shredded up, I may have a fucked up wrist -it hurts like hell to “move it like Read More ...
The post OH SHIT…NOT Again! What Classifies A Fall As A “Good” Fall? appeared first on BBHwithMS.
According to Healthline: Some people with multiple sclerosis (MS) can feel their symptoms worsen when they become overheated. When elevated body temperature impairs vision, it’s called Uhthoff’s phenomenon. Uhthoff’s occurs Continue reading
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(IMAGE: Compliments of Vintage Girl – See her amazing Orange Tumeric Margarita recipe below) Shortly after I was diagnosed with Multiple Sclerosis I had a number of people send me Continue reading
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